Hope everyone is doing well and has a great day!
I don't have much to show you today, just a new painting I started yesterday and it's far away from being finished, but I like her very much already, so I thought I will share it with you. It's on a wood panel measuring 12"x 13" and the work I've done until now is only in pencil and PanPastels.
http://wyartjewels.blogspot.com/ ( if don't know it already, she has a FABULOUS weekly giveaway, so go check her blog) and in this way I found out about Satori. She is a gorgeous, brave little girl ho has Spinal Muscular Atrophy and very soon she will have a full spinal fusion, but better to let you read the letter I read on Wyanne's blog.
For those of you who don't know me, my name is Melissa Lewis, Haut Totes on Etsy http://www.etsy.com/shop/HautTotes, as well as Hauttotes on twitter http://twitter.com/HautTotes.
My 10 year old daughter Satori has Spinal Muscular Atrophy (type II) She uses a power wheelchair, can't walk, crawl, etc. Despite that she's a rock star!! She has a super sense of humor, gets straight A's even though she misses an average of 40 days of school a year! She's a great sister & daughter & a fantastic person all around.
Because she is so physically weak her body doesn't hold its self up well and she has developed severe scoliosis. The curve of her spine it is now starting to crush her lung, so on March 31 she will have full spinal fusion. They will open her back from the neck all the way down, insert 2 titanium rods, one on either side of her spine, wire the whole thing up and place donor bone in between all the vertebrae. Eventually it will all grow together "fusing" her spine into one long bone.
We are traveling to California to have this done, with an estimated stay in the hospital of 7-10 days. I am hoping to get people to send her postcards from all over. I think that the messages (and pictures) will be fun for her. I also plan to take an atlas and have her mark off states and countries (sneaking in a little geography).
We have great insurance, a FANTASTIC surgeon and a world renowned hospital!!
**Satori is not in need of anything more than some fun messages and exiting postmarks!**
I thought who better than my Etsy and Twitter friends to make that happen!
I am posting this now for those of you who live outside of the US. If you live within the states you should probably hold off sending your post cards for 2 weeks.
This is how the post card should be addressed
Surgery date 3-31-10
Davis 7 Pediatrics
UC Davis Children's Hospital
2315 Stockton Blvd.
Sacramento, CA 95817 USA
**Be sure to include the surgery date**
Thanks so much everyone!!!
I sent today a card and a little something for Satori to cheer her up! I thought you might like to join us in sending lots of good, warm and cheerful thoughts to this sweet little girl and her family! Surgery updates you can find here http://postcardsforsatori.blogspot.com/.
Thank you for your visit, have a great weekend,
Lots of love, Sanda xx
BEEN AWAY FOR AWHILE...HOWEVER, I'M STILL HERE!
5 years ago